I can't believe it has been a month since Jared's surgery and how well he is doing. When we first returned home from Pittsburgh, that first week was a little hard. He was still taking his steroids, which made him more emotional, and irritable. He cried a couple of times saying, "I just want to feel like a normal kid again." It just broke my heart, but after he was done with the steroids things improved sooo much. He and Gabrielle started to play like they used to and his whole mood about him improved. Our other worry since we have been home is Jared's low grade fevers. At first we were giving him Advil around the clock and now they have come much more infrequent. We had him checked for pneumonia, and other infections, but there was never evidence of any type of infection. He is on antibiotics and we feel that these fevers are due to the plastic stents in his nose. Andrew and Jared will be leaving Wednesday to return to Pittsburgh so that Jared can get these stents removed and also receive an angiogram. If all goes well they will return on Friday.
We still have not yet received word about specific dates for Jared's radiation treatment. The radiologist oncologist contacted us a couple of weeks ago and we plan on making contact with him this week. Hopefully, within the week or so we should know more so we can plan more with regards to housing, etc.
Jared really is doing so well. His speech is great (it's quiet, but very understandable) and even his eye has improved greatly since first being at home. We feel so grateful for how things have come about since first being diagnosed. It really is a miracle! Jared had a great 4th of July celebration with cousins that came to see him from Texas. It has been so good for him to be able to be with those he loves to be with, to work, play, be active, laugh - doing exactly what a seven year old should be doing. We know Heavenly Father's hand has been in all of this from the beginning and we feel so grateful to Him for all the blessings.
Happy 4th of July everyone! Thank you all so much.
Thanks so much for the update Jaim. We'll pray for your boys tomorrow as they head to Phili. I'm so glad you're all enjoying yourself. You're all just adorable!
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Jennie (Gardner) Savage
It's so great to see him improving each day, we love him and are grateful for his example of being strong through these tough times...we wish him well this week and safe travels for the both of them.
ReplyDeleteHow fun for us to see the pictures and get your update! We miss you all so much and wish we could be there with you for all the fun. We're glad that things have been improving. Every prayer includes dear Jared.
ReplyDeleteGood luck tomorrow, Jared! We pray everything will go well and that you'll be able to return on Friday as hoped. We love you!!
Aunt Angie, Uncle Mark, Ana and Isabelle
We hope all is going well today in Philli...I'm sure its hard not to be there with them but hopefully they'll be home before you know it! So glad you had a fun 4th and that Jo and the cousins could all be there with you! Love you guys so much!
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