Tuesday, August 11, 2009

Day By Day




Here are some pictures that we had taken right before we left for Boston! Our photographer, Mary Kim Photography, did a wonderful job! We are anxious to see the rest. She posted more on her blog @: www.marykimphotography.blogspot.com
We recommend her to everyone for your future family portraits. :) Thanks Mary Kim for working so well with us and our rushed schedule!

Everyday, to be honest, is about the same, which I guess is good, Jared does not seem to be accelerating downward. Jared is although very lethargic, he feels sick to his stomach a lot, sometimes he feels dizzy (the tumor is pressing right on his inner ear causing symptoms like this) and of course headaches periodically throughout the day. His speech and eating abilities have stayed relatively the same these last two weeks. He seems to struggle more with liquids than solid foods when he eats. Sometimes he will do great when eating and have no choking spells and other times he doesn't do quite so well. We saw the Doctor yesterday and she increased his Rapamycin since Jared seems to be tolerating it well. Another positive note is Jared is able to swallow his pills so we have had no need to use his GI tube for meds since the first two doses of his medicines. Yeah!

I think Jared looks at his chest, and gets wigged out a bit like he is some sort of robot or something. Jared has the port-a-cath underneath his skin that protrudes out, and then the GI tube, which as Andrew described earlier literally looks like a snap to a beach ball. Right now he has three little "buttons" surrounding the GI tube which are helping holding it in place while it heals. These "buttons" will eventually fall off, but in a way his chest does look a little robotic. He is so quiet about it all and just sort of takes it all in. He has his moments of perking up where we get to see more smiles, but we sure do miss the real Jared and wish this tumor would go away so we could have him back! We are moving forward . . . and feel hopeful that soon we will have our Jared back.

7 comments:

  1. Your family pictures are beautiful! What a sweet family you have! Thank you for updating and sharing the latest with us. Tell Jared we love him and continue to pray for our favorite super hero/robot! You are constantly in our thoughts and prayers. Love, Stacey

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  2. Your pics are beautiful!
    We continue to pray for Jared to heal.
    Sam talks about Jared often and misses the good times they had this summer in Utah!
    We love you all!

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  3. Dearest Andrew, Jamie & Jared

    They are WONDERFUL pictures and such good-looking people both kids and adults! Thank you for sharing............ I often think about what a darling baby & child Jamie was. With those plump cheeks, sparking blue eyes and sincere/earnest confidence, I thought she looked Just like President Spencer W. Kimball and hence my nick-name for her.

    I just found out this week that President Kimball's dad very much wanted to name his son after B. R. Roberts who was Senior President of the Seventy and Perhaps the Church's most intellectual thinker & writer. A remarkable man who didn't learn to read until he was 18 and yet, next to the scriptures. wrote some of the most important books about and for the Church.

    However, Elder Roberts did not vote for the women to get the vote in Utah. The women did get the vote and Elder Robert was on the wrong side of that election.

    When President Kimball's dad told his wife and other family members that he was going to name their new male baby: Brigham H. Roberts Kimball. Sister Kimball said: "absolutely not" and they finally agree on SPENCER WOOLLEY KIMBALL. So, chances are, had his mom not refused, my nick-name for Jamie would have been: BRIGHAM HENRY ROBERTS KIMBALL...

    Regardless of all this, Dear Andrew, Spencer, Jared, and the whole family, you make Spencer KImball, B.H. Roberts certainly all the Vances & Becks and your many many friends so proud to know you, you are all choice children of Heavenly Father and spiritual siblings of the Lord Jesus Christ The Godhead will in their wisdom and good time, make all things right. What a profound promise, IN SPITE OF UNCERTAINTIES, CONFUSION AND YOUR POWERFUL PARENTAL LOVE FOR JARED AND EACH OTHER THAT STIR YOUR TENDER FEELINGS, ....THE BOTTOM LINE IS THAT THE GODHEAD WILL SUSTAIN, BLESS ALL OF YOU AND SOONER OR LATER: MAKE ALL THINGS RIGHT! Love, Punkaman

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  4. I love these beautiful pictures and the others on the photography website. I'm so glad you shared them. We couldn't stop looking at them and the girls kept asking for each of them to be clicked on so they could see all of your faces better. You're all so very photogenic and, what's better, such a spiritually beautiful family. We learn so much from you all the time. Of course, you're in our every prayer. We love you more than words can say!
    Ang and family

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  5. love the pics and the people in them! you rock! (and my dad never misses a chance to pontificate!)

    :-)

    love ya!

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  6. Love the pictures!
    It was so fun talking to y'all the other night. We love you guys!

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  7. Your pictures look great! We miss you guys and pray for you all with each prayer. Hoping things continue to go well -- what a big hike up those steps Jared - way to go! Love you guys! The Merrills

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