Thursday we ventured out of our hotel room, put our seven-year-old in a stroller, and explored part of the freedom trail. We saw the USS Constitution Battleship and Bunker Hill Memorial. At Bunker Hill you can climb to the top of the monument, all 294 stairs of it. Jared wanted to try so we started. Andrew started behind Jared and put his arms underneath Jared’s armpits and sort of just lifted up him up a good portion of the way. We stopped and rested a few times, but we pushed to the end, and made it to the top. Jared had a huge smile when we did and you could tell how proud he felt that he made it and that he finished. It was cute.
Yesterday we drove up the coast a little bit and went to Nahant Beach. After watching Jared throughout the afternoon we can’t help but be filled with so much hope and optimism. Jared would run a bit chasing seagulls, and dig holes in the sand with his Dad. He still has his moments of holding his head/ear, feeling sick to his stomach and still hard of hearing. But all in all we know for sure he has not gotten worse since starting the Rapamycin. Even if it’s just stabilizing the tumor, it’s doing something! We are filled with high hopes and feel so grateful to be here under all the different Doctor’s care that we have been here in Boston. We are anxious for our appointment on Monday to hear what one of our Doctors has to say. This is all so new to everyone . . . but so exciting and from what we have seen these last few days very hopeful for a promising outcome!
I am so impressed...What neat memories you are creating for all of you which are priceless. Jared, you are so lucky to have such wonderful parents who are so in tune with the spirit and who are guided in everyway for your life and care and your needs at this time. We all love you and are so praying and feel as though he is answering our prayers with each and every up date that we read. You are awesome--Hope we see you really soon and hang in there. The Lord is very much aware of you and your family at this time. Love Grandma
ReplyDeleteVictory dances at the Christiansen home front comin' Jared's way! Hooray for all of Jared's improvements and the fun site seeing!! We wish we could have joined you. You've reminded us of some of our favorite memories of living there. Thanks so much for all the fun pics. Keep 'em coming! I hope you bought those dashing rubber hats! They look so fun I think I might just have to get some for us. :)
ReplyDeleteWe love you and miss you so much! I'm so grateful for the power of faith and prayer. Thanks for your amazing examples!!!
Love from all of us!
What a wonderful update! We continue to pray for a miracle and know truly that Jared is surrounded by angels throughout this entire process. We love you all so much and miss seeing you, but are grateful that you are in the hands of such tremendous doctors!
ReplyDeleteWe love you,
The Esplins
Awesome news! What a strong kid Jared is, I love that he set a goal to get to the top and stuck with it. I love that you both helped him make it instead of discouraging him. Now I'm going to sound like an Italian mother: "Jaime, EAT! I could snap you like a chicken bone!" Ok, I'm done with that part now. I love you all bunches. Give each other big hugs.
ReplyDeleteOh! How the heart does swell with gladness to see you all with smiles and enjoying some of the Boston fun around you. It does my heart good to see those smiles on Jared's face and to see you all together having some R&R moments. We love you and know that you are being blessed at this time. We pray continually for that priceless miracle and know that we are witnessing miracles along the way that are indeed--tender mercies. We pray for ministering angels to continue to lift you and keep you all moving to the "top"! We keep fighting and pushing forward with hope and faith. Thank you for the pictures and the happiness you are sharing with us. We love you all sooo much!
ReplyDeletexoxGrandma Vance
Just wanted to give your sweet family a shout out and tell you we're thinking and praying for you all often. We miss you!! Love, Nate, Hillory, Claire & Amelia Dahle
ReplyDeleteI love you Jaime and Andrew and Jared and your darling family. Your faith astounds me and your hope is infectious. Thank you for sharing your feelings with us. I'm so glad that the doctors and medicine in Boston have all come together for a productive solution and that you were able to enjoy a much deserved weekend break with your SuperHero! We are praying for you.
ReplyDeleteLove, Jennie (Gardner) Savage
Andrew and Jamie and your cute Superhero, We just wanted to let you know that are thoughts and prayers continue to be with your family. You have such a beautiful family. What a strong little guy Jared is and what great parents. Love Rich and Melinda
ReplyDeleteWow that was a lot of stairs! I am impressed!! Way to go Jared! Thanks for the update, sounds like you have made some great memories. I pray for you and your beautiful family daily.
ReplyDelete- Mary Kim