Tuesday, June 9, 2009

Hello Out There



Well, not a whole lot has changed, but Jared is showing signs of getting better. We decided to post a short video of Jared saying hello to Gabrielle and Bradley, but thought you would all enjoy it.

Jared has to go in to see the ENT doctors tomorrow for some scoping of the throat and vocal chords. They have to check his swallowing capabilities as well as the possibility of aspiration. Hopefully this will free Jared to be able to eat on his own and remove the hunger pains. His voice is still very soft, as it was prior to the surgery, and they want to make sure there has not been permanent damage. The downfall of these tests is the likelyhood of sedation. I would rather they sedate him though, than see him fight the white jacketed men shoving hoses down his nose and throat. What a sureal experience this all is.

Jared had a lot of visits from doctors and nurses this morning who just wanted to keep inspecting everything and everywhere. Just after he had said goodbye to one set of doctors the ENT doctor walked into the room to place the feeding tube further down his nose so that it could reach his intestine. Needless to say, Jared did not welcome the visitor and quickly pulled the sheet over his head. I hope he reads this someday and realizes just how classic some of these moments have been. They did manage to push the tube from his nose all the way down to his toenail.

I have to say that I am really missing little Gabrielle's hugs and Bradley's tackles. Thank you Darren for the video. I well up thinking about them and how grateful I will be to have us all together again. Jaime ran into a man in the laundry room here at the hospital (no she has not taken on full employment, just needed some clean clothes to wear) who clearly had made enough long term visits to the hospital with one of his kids that he was giving advice on how to do laundry efficiently in the hospital. As we walk the hospital daily we realize that there are people who have life pretty hard. I find it really hard to complain when we really have it quite well.

This has been a life changing experience and your letters, comments prayers have been so strengthening. To think of prayers being offered up from living rooms, bedrooms, dinner tables and temples, both from the children and adults alike, provide much needed strength. Our life has brushed by so many great people and this experience has brought even greater evidence of that blessing.

We have been blessed to have an amazing outcome thus far and I thank you all again for your amazing love and support.

7 comments:

  1. The video is so sweet! Tell Jared that Payton, Hadley, and Evan loved watching it and that we are thinking about him always! Praying that the doctor appointment with the ENT goes super well and he'll be able to eat soon.

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  2. your kids absolutely loved it...they keep wanting me to play it and Bradley keeps saying Baseball game Jared. (Must still remember it???) anyways we love you Jared.

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  3. Amazing kid you got there. I actually got talking to Dr. Orlandi, the sinus specialist in the ENT clinic I work at, and he was pleased to hear you are out in Pittsburg. After explaining the situation to him, he let me know that he's had plenty of experience removing tumors and working with what Jared is going through and offered to help where he could. We're all thinkin' of you and your family. You certainly are a superhero Jared!

    Joey & Stacy

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  4. I just found out about Jared and have been glued to the computer updating on his progress. What a strong little guy. We love you guys and will have you in our prayers!!!
    Marla(Simonsen)Keller

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  5. Addison wants to know why Jared has been in the hospital for "100 years, that's a LONG time!" I'm sure it feels like 100 years! We are excited for your progress & can't wait to hear the results of your visit to the ENT doctors! FOOD, that would be so great!

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  6. Jared, you are amazing! It is so good to see you smile. We love you so much and hope that you can come home soon. Meg, Kade & Hunter want you to know they are praying for you and hope you get to eat good food soon. :)

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  7. Thanks so much for posting this video!!! Ana and Isabelle want to see it over and over and keep asking when we're going to get to visit you guys again. Hopefully soon. :)
    We're praying for great news and results from the ENT visit/procedures today. We're excited for Jared to get to eat food again. The girls want to know what he wants to eat first? :)
    Love you all!
    Ang and fam

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