The Wait Begins

After a fun night of playing games and enjoying Journey to the Center of the Earth we enjoyed Super Mario Bros until we conquered world 2. It was a cozy site with all three of us piled up on Jareds bed. Jared did express his fear for all that is going on, but in general has remained pretty calm. He woke up this morning and we discovered that the IV had infiltrated his forearm and left it pretty swollen and sore. This is not a huge deal but they will no longer be able to use this arm for IV during surgery. Jared is great and we had him laughing pretty good last night. It really was a lot of fun to have that interaction prior to all that is happening today.

He was put under this morning at about 10:30 EST and will remain under for the CTA and MRI scans and will be immediately transported to the OR following imaging (about 12:00). It is pretty heart wrenching to watch your child go under anesthesia. He will obviously be fine from it, but it just yanks at the heart strings. Jared did not have a great nights rest so he slept right up to the Nitrous Oxide gas. We are now just waiting outside Radiology until we are moved to the OR waiting room.

The surgeon came into our room this morning and talked to us about the details of the surgery and all that they are anticipating. Long story short is the possibility of a neck fusion and tracheostomy depending upon how low the tumor is in the skull base. There is also the possibility that they will have to stage the surgery depending upon the length of time they are operating on Jared. If this is the case they will most likely finish the work early next week. It did appear however that they were anticipating a lengthy surgery. We will keep you all updated as we hear actual details throughout.

Well, we are in this for the long haul and we are glad to be at this stage. Thanks for all of your expressions of support and hope. We are very hopeful for a succesful outcome and will be anxious to see our sweet boy today whenever it is. Love you all.